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Make an online donation to Rett Syndrome research in honor of Brynn! |
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Special Thanks for Brynn's 2012 Donors
| Peter Engelbrecht | Steffanie Phillips |
| Kristin & Bill Hileman | Stephen Dagger |
| Katie Wulff | Travis Hileman |
| Allison Criger | Tori Whittaker |
| Joan Thornton | Martha Rose Sapp |
| Lisa Musolin | Catherine Loertscher |
| Daniel and Emily Case | The Leavitt Family |
| Nicholas Estep | Catherine Loertscher |
| Sara Haley | Marina Flores |
| Mary Anne Ebner | Christie Wade |
| Dean Rindlisbach | Kristin Sheets |
| Lisa Burks | Stephen Owens |
| Richard Bell | Catherine Gordon |
| Greg Young | Paul Bryson |
| Lori Moorehead | Denise Alex |
| Laurie Hileman | Byers Automotive |
| Amy Frick | Daniel Neary |
| Meredith Merz | Shannon Howard |
| Kimberly Morgan | Nathan Godfrey |
| Joann Caldwell | Sarah Altherr |
| Anne Gavorcik | Corie Wyatt |
| Neil Koenig | Ann Marie & Adam Bevan |
| Ellen Hodgins | Yehira Negron |
| Elizabeth Sadlack | Brandelyn Blair |
| Derek Mair | Trisha Darden |
| Catherine Wenzke | Irene Tidball |
| Cahterine Loertscher | Christopher Basinger |
| Julie Rosekrans | Ann Horton |
| Randy Koenig | J. Gumbo's |
| Jill Dagger | Sherry Hileman |
| Pamela Wright | Hilary Dishon |
| Tiffany Dagger | Erin House |
| Amanda Willer | Alvin Bell |
| Kathleen Grimes | Carol Pace |
| Tammy S Nowicki |
Brynn's Story
My husband and I always knew we wanted to be parents when we were married. On November 15, 2006, we were blessed with an angel from above. Brynn Peyton Hileman.
Brynn has brought so much joy to our lives and is the most amazing child. If you are having a down day, she will always make you smile.
Brynn was a little late at doing most things as an infant. She rolled over late, sat up late, and crawled late. We knew something was wrong, but couldn't figure out exactly what. This was when Brynn was 14 months old. Her pediatrician said if she is not walking by the time she is 2, we will refer you to Neurology.
So her 2nd birthday was here and she still was not walking. We then go to the neurologist who refers us to the Developmental Clinic to test for autism. The results are that she does not have autism, but suspect that she may have Rett Syndrome.
We then proceed to see the neurologist on April 27, 2009, where it was confirmed that Brynn does have MECP2 mutation that is consistent with Rett Syndrome.
We now know what is wrong with our sweet little angel from above and are very blessed to know about Rett Syndrome. Brynn teaches us a little about her world and we teach her a little about ours. She may not be able to walk or talk, but we are NEVER going to give up. We joined GP2C for support and to raise awareness about Rett Syndrome. We hold a 5k annually in honor of Brynn to raise awareness and funds for our cure! If you see our sweet little angel with a SMILE on her face, Smile back. It's just Brynn's way of saying "Hello".
Brynn has brought so much joy to our lives and is the most amazing child. If you are having a down day, she will always make you smile.
Brynn was a little late at doing most things as an infant. She rolled over late, sat up late, and crawled late. We knew something was wrong, but couldn't figure out exactly what. This was when Brynn was 14 months old. Her pediatrician said if she is not walking by the time she is 2, we will refer you to Neurology.
So her 2nd birthday was here and she still was not walking. We then go to the neurologist who refers us to the Developmental Clinic to test for autism. The results are that she does not have autism, but suspect that she may have Rett Syndrome.
We then proceed to see the neurologist on April 27, 2009, where it was confirmed that Brynn does have MECP2 mutation that is consistent with Rett Syndrome.
We now know what is wrong with our sweet little angel from above and are very blessed to know about Rett Syndrome. Brynn teaches us a little about her world and we teach her a little about ours. She may not be able to walk or talk, but we are NEVER going to give up. We joined GP2C for support and to raise awareness about Rett Syndrome. We hold a 5k annually in honor of Brynn to raise awareness and funds for our cure! If you see our sweet little angel with a SMILE on her face, Smile back. It's just Brynn's way of saying "Hello".
