Hannah Joy's Page

Make an online donation to Rett Syndrome research in honor of Hannah Joy!





Girl Power 2 Cure funds research through RSRT. Click to view the projects

 
Special Thanks for Hannah Joy's 2014 Donors
Kim Lehmberg Jodi Johnson
Kendall Wadsworth Pat & Lisa Ziriax
Stephanie Razon

Hannah Joy's Story

My name is Hannah Joy Hooks. I am about to have my 2nd birthday on March 30. I was diagnosed with Rett Syndrome on December 18, 2013. Up to one years old I was developing normally and then my progress started to slow down. After many trips to different doctors and genetic testing it was discovered that I have Rett Syndrome. I am not able to walk or talk, but I resonate joy and always have a smile on my face. I am my parents little angel and they see life in a whole new way because of me. Having Rett Syndrome has it's challenges and will continue to do so, but I also know that God put me on this Earth for a reason and I am already changing the lives of everyone I meet. THERE WILL be a CURE for RETT SYNDROME!