Juliana's Page

Make an online donation to Rett Syndrome research in honor of Juliana!





Girl Power 2 Cure funds research through RSRT. Click to view the projects

 
Special Thanks for Juliana's 2012 Donors
Ramona Johnson Ann Marie Bevan
Raymond VickLori McGinnis
Jamie MaysHang Bower
David ThurberJenelle Kahrl
The Dream Team Everyone involved with Golf For A Cure

Juliana's Story

Welcome to Juliana’s page!

We’re so excited that you’ve decided to visit! There’s a lot of really cool things that you Rett Syndrome. Rett Syndrome is a neurological disorder that affects every part of her development including her ability to walk and talk.

Rett Syndrome can be really difficult for everyone involved, but most of all, really challenging for Juliana. Although she can’t talk, she is able to let us know when she is happy through her amazing eyes and very contagious giggles. She is absolutely adored by everyone she encounters, but especially by her little sister Olivia. The way Olivia looks at her big sister will melt your heart. It’s amazing that although Olivia is only 2, she already knows what an awesome sister she has and is never happier than when they are together. I know Juliana will teach her little sister many valuable lessons in life as she has already taught us all so much.

She has good days, and sometimes, some not so good days. The doctors have told us that because of Rett, Juliana may never do many of the most basic things that you and I often take for granted. You can imagine that those are very difficult things to hear about your child.

There is hope though. Rett Syndrome research is moving fast. In fact, scientist have found a way to reverse the disease in mice, leaving us with a lot of hope for a cure in our lifetime. What we really need is your help. Help us tell everyone we can about Rett Syndrome and if you can, donate to the cause. The great thing is that 100% of all donations from Juliana’s Girl Power 2 Cure web page go directly to research! Isn’t that great?

Well, thanks so much for visiting! Please come back often and we’ll keep you updated.

We love this quote: Powerful dreams inspire powerful action!

Please help us make our dream a reality by putting an end to Rett Syndrome for good!

Go Girl Power!